Innovative mobile technology alcohol education for young people with type 1 diabetes   Leave a comment

This article based was published in Practical Diabetes - 30 (9): 376–379

Abstract

Views of young people with type 1 diabetes are vital in developing quality services and improving health-related quality of life (HRQoL), yet research on their lifestyle and use of web and mobile technology to support their condition and in non-health related areas is sparse. The aim of this research was to develop an insight into young people’s current use of web and mobile technology and its potential impact on HRQoL by constructing an in-depth picture of their day-to-day experiences, exploring how they made use of technology in their lives and in relation to their condition and treatment – then, building something to help them.

Data were collected by semi-structured, in-depth qualitative interviews (n=9) of young people with type 1 diabetes and aged 18–21 years. Interviews were transcribed and loaded onto NVivo for theme identification. Data analysis was also undertaken during initial interviews (n=4) to locate potential ideas for technical development. Latter interviews (n=5) assisted in the iterative sociotechnical design process. Three suggestions for improvement were taken forward for prototyping with one – an alcohol education guide – being developed into a clinically approved app.

This article documents the procedures and sociotechnical design principles involved in the creation of a patient-centric app. It provides an innovative example of how education with the aim of improving HRQoL can be designed in a way which meets the needs of a particular group and values and encourages their input to assist in the creative process, while at the same time conforming to clinical guidelines.

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Type 1 diabetes friend: alcohol guide v2.10 released   Leave a comment

What’s New in Version 2.10

Option to complete survey on this app added.

As of September 22nd 2013, this app has now been downloaded 1,101 times worldwide. This means that the user base is now large enough to do further research on its use and usefulness to young people with type 1 diabetes.

If you have Type 1 Diabetes and have already downloaded and are using the App:
We want to hear from YOU! How useful has it been to you and can you provide some more information on how, why and when you have used it. When and why did you download it originally and do you have any suggestions for improving it.

New Users with Type 1 Diabetes:
We want to hear from YOU too! Once you’ve downloaded and installed it onto your mobile phone and have used it for a month or more, then please feel free to let us know about your use of it.

Survey Details
The survey will take you around 15 minutes to complete. If you are able to provide more than a couple of sentences in describing your use of the app it would be much appreciated as this will make the survey data more useful to us. Thanks very much in advance for completing this survey as your feedback is very important for future development.

You can access the survey here

(Please note that by completing this survey, you agree that your answers may be used in the researchers final dissertation and may also be reproduced in academic publications and presentations)

Downloading the App
The Type 1 Diabetes Friend: Alcohol Guide can be downloaded for free from the Apple App Store:

https://itunes.apple.com/gb/app/type-1-diabetes-friend-alcohol/id582346932?l=en&mt=8&ign-mpt=uo%3D2

or the Google Play App Store for Android users:

https://play.google.com/store/apps/details?id=com.apapps.t1dfriendalcoholguide&feature=search_result#?t=W251bGwsMSwxLDEsImNvbS5hcGFwcHMudDFkZnJpZW5kYWxjb2hvbGd1aWRlIl0.

Your Help Is Required – Type 1 Diabetes Friend: Alcohol Guide Survey   Leave a comment

Background
Having type 1 diabetes means that it is important to know how to keep safe when having alcohol. The Type 1 Diabetes Friend: Alcohol Guide is a free mobile app, aimed at helping young people find out what to do to keep safe and how alcohol can affect their body. As of September 22nd 2013, the app has now been downloaded 1,101 times worldwide (with 1,042 Apple and 59 Android downloads). This means that the user base is now large enough to do further research on its use and usefulness to young people with type 1 diabetes.

If you have Type 1 Diabetes and have already downloaded and are using the App:
We want to hear from YOU! How useful has it been to you and can you provide some more information on how, why and when you have used it. When and why did you download it originally and do you have any suggestions for improving it.

New Users with Type 1 Diabetes:
We want to hear from YOU too! Once you’ve downloaded and installed it onto your mobile phone (Apple or Android) and have used it for a month or more, then please feel free to let us know about your use of it.

Survey Details
The survey will take you around 15 minutes to complete. If you are able to provide more than a couple of sentences in describing your use of the app it would be much appreciated as this will make the survey data more useful to us. Thanks very much in advance for completing this survey as your feedback is very important for future development.

You can access the survey here

(Please note that by completing this survey, you agree that your answers may be used in the researchers final dissertation and may also be reproduced in academic publications and presentations)

Downloading the App
The Type 1 Diabetes Friend: Alcohol Guide can be downloaded for free from the Apple App Store:

https://itunes.apple.com/gb/app/type-1-diabetes-friend-alcohol/id582346932?l=en&mt=8&ign-mpt=uo%3D2

or the Google Play App Store for Android users:

https://play.google.com/store/apps/details?id=com.apapps.t1dfriendalcoholguide&feature=search_result#?t=W251bGwsMSwxLDEsImNvbS5hcGFwcHMudDFkZnJpZW5kYWxjb2hvbGd1aWRlIl0.

Ideas and Enhancements Related to Mobile Applications to Support Type 1 Diabetes   Leave a comment

This article was published in JMIR mhealth and uhealth (Volume 1 Issue 2: 2013).

Abstract

Background: Mobile devices have become increasingly important to young people who now use them to access a wide variety of health-related information. Research and policy related to the integration of health information and support with this technology do not effectively consider the viewpoint of a younger patient. Views of young people with type 1 diabetes are vital in developing quality services and improving their own health-related quality of life (HRQOL), yet research on their lifestyle and use of Web and mobile technology to support their condition and in non–health-related areas is sparse.

Objective: To develop insight into young people with type 1 diabetes and their current use of Web and mobile technology and its potential impact on HRQOL. This can be achieved by constructing an in-depth picture of their day-to-day experiences from qualitative interviewing and exploring how they make use of technology in their lives and in relation to their condition and treatment. The goal was then to build something to help them, using the researcher’s technical expertise and seeking users’ opinions during the design and build, utilizing sociotechnical design principles.

Methods: Data were collected by semistructured, in-depth qualitative interviews (N=9) of young people with type 1 diabetes aged 18-21. Interviews were transcribed and loaded onto NVivo for theme identification. Data analysis was undertaken during initial interviews (n=4) to locate potential ideas and enhancements for technical development. Latter interviews (n=5) assisted in the iterative sociotechnical design process of the development and provided additional developmental ideas.

Results: Six themes were identified providing an understanding of how participants lived with and experienced their condition and how they used technology. Four technological suggestions for improvement were taken forward for prototyping. One prototype was developed as a clinically approved app. A number of ideas for new mobile apps and enhancements to currently existing apps that did not satisfactorily cater to this age group’s requirements for use in terms of design and functionality were suggested by interviewees but were not prototyped.

Conclusions: This paper outlines the nonprototyped suggestions from interviewees and argues that young people with type 1 diabetes have a key role to play in the design and implementation of new technology to support them and improve HRQOL. It is vital to include and reflect on their suggestions as they have a radically different view of technology than either their parents or practitioners. We need to consider the relationship to technology that young people with type 1 diabetes have, and then reflect on how this might make a difference to them and when it might not be a suitable mechanism to use.

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Science café: Health in the time of mobile technology   Leave a comment

Bournemouth University is throwing open its doors from 3rd to 14th June 2013 and inviting you to join us in our Festival of Learning. With over 100 events to choose from, you can learn how to master social media, see if you are a super-recogniser or join in the debate about renewable energy sources. It’s a great opportunity to learn something new and meet new people. Many of the events are free, and are delivered by BU staff keen to share their enthusiasm and expertise with you.

BU Festival of Learning Website

An event concerning the development of the Type 1 Diabetes Alcohol Education Guide is a part of the Festival of Learning – Health in the time of mobile technology. It will be a Science café and is due to run on Monday 10th June between 10.30am and 12pm.

Science Cafés are informal, accessible forums for the discussion of current work and interesting scientific issues. Anyone can participate; speakers are there to be questioned and talk about their work at all levels. This event covers the PhD study behind the app. It will outline the approach and demonstrate the Alcohol Education App which has been developed. The aim of the study being to develop greater insight into young people aged between 18 and 21 with type 1 diabetes and their current use of web and mobile technology and the potential impact on their quality of life.

You can book for this free event now

Mobile Alcohol Guide App for Type 1 Diabetes (Press Release)   2 comments

Having type 1 diabetes means that it is important to know how to keep safe when having alcohol. The recently launched Type 1 Diabetes Friend: Alcohol Guide is a free mobile app, aimed at helping young people find out what to do to keep safe and how alcohol can affect their body.

This innovative tool has been designed by part-time Bournemouth University PhD student Andy Pulman as a part of his study, in collaboration with the Poole Hospital Diabetes Centre for use by their patients. Mobile and web technology offer innovative ways of improving communication between health professionals and patients, which could be used for education and helping to improve self-management in young people with type 1 diabetes.

Type 1 diabetes can occur at any age, but usually develops before the age of 40, often during teenage years. Someone who has type 1 diabetes will need to take insulin injections for life and in order to reduce their risk of developing complications, must make sure that their blood glucose levels stay balanced by eating a healthy diet and carrying out regular blood testing. Andy interviewed a number of young patients with type 1 diabetes at the Centre to obtain their ideas for suggesting new technology, which could help them. He then subsequently designed the app with assistance from the Centre, as interviewees suggested they would find a guide about alcohol limits particularly useful on a night out which could then be accessed via a mobile device. Interviewees and clinical staff provided valuable feedback during the design process on the quality of the app to ensure that the final product was of a high quality, clinically accurate and would likely to be used by patients once launched.

Andy feels this is a really exciting time to be involved in mobile health development:

Health apps offer tremendous potential as they can be geared towards particular conditions like type 1 diabetes or focus on providing support for specific user bases such as practitioner, patient and carer communities. The creation of this app provides a great example of how patient education can be designed in a unique way that meets the needs of a specific patient group and values and encourages their input to assist in the creative process, whilst also conforming to clinical guidelines.

For quality purposes, the information on the app was checked and approved by the Poole Patient Advice and Liaison Service, and has had the Information Standard logo applied to it – it is the first app to have gone through this process at the Hospital. The app also features on the recently launched prototype Health Apps Library set up by the NHS Commissioning Board as a resource assisting the public and care professionals in the UK decide which apps could best assist them to inform, monitor, and improve health and care.

Andy and members of the Poole Hospital Diabetes Centre will be attending the forthcoming Diabetes UK Conference in March 2013 to chat about this innovative work. They will be presenting three posters at the conference:

Andy will also be presenting a session about the App’s development during the Bournemouth University Festival of Learning in June 2013.

The Type 1 Diabetes Friend: Alcohol Guide is available as a free download from the Apple App Store:

https://itunes.apple.com/gb/app/type-1-diabetes-friend-alcohol/id582346932?l=en&mt=8&ign-mpt=uo%3D2

or the Google Play App Store for Android users:

https://play.google.com/store/apps/details?id=com.apapps.t1dfriendalcoholguide&feature=search_result#?t=W251bGwsMSwxLDEsImNvbS5hcGFwcHMudDFkZnJpZW5kYWxjb2hvbGd1aWRlIl0.

The development of an innovative mobile phone app for type 1 diabetes alcohol education   1 comment

Having type 1 diabetes means that it is important to know how to keep safe when having alcohol. The recently launched Type 1 Diabetes Friend: Alcohol Guide is a free mobile app, aimed at helping young people find out what to do to keep safe and how alcohol can affect their body.

Members of the development team will be attending the forthcoming Diabetes UK Conference in March 2013 to chat about this innovative work. We will be presenting three posters at the conference the third of which is detailed below:

The development of an innovative mobile phone app for type 1 diabetes alcohol education

Abstract Category

Patient Education and Self-management

Introduction

Social media is being increasingly used to try and engage young people with their healthcare issues. However, most mobile diabetes applications (Apps) do not include personalised patient education, a key facet of diabetes self-management. We sought the views and ideas of young people with type 1 diabetes to enable the design of innovative new Apps which might help to improve their quality of life. This project highlights an innovative, patient-centric approach to the development and production of a health based mobile App concerning diabetes education about alcohol.

Methods
Data collected by semi-structured, in-depth qualitative interviews (n=9) of people with type 1 diabetes aged 18-21. Interviews were transcribed and loaded onto the qualitative data analysis tool NVivo. Baseline data analysis was undertaken to locate potential ideas for mobile App development, with suggestions chosen needing to reflect interviewee requirements and to meet clinic goals.

Results

Interviewees suggested that they would find a guide which could be accessed via a mobile device about alcohol limits and the effects of alcohol on their diabetes particularly useful on a night out. An App about alcohol and diabetes, ‘Start Safe, Stay Safe’, was developed with further input from young people with type 1 diabetes and clinic staff.

Summary

In developing a mobile App about alcohol and diabetes, we have shown how young people with type 1 diabetes can participate effectively in the design and implementation of new technology which they can then use to improve their quality of life.

Poster (PDF)

DUK13 App Develop

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